Cystic Fibrosis Canada: Turning Decades of Determination into Lifelong Impact

July 7, 2025

65 Years of Bold Progress

How Science, Community &

Compassion Are Beating the Odds

Sixty-five years ago, a small but mighty group of families and researchers in Canada set out with one big goal: to outsmart cystic fibrosis. Fast-forward to today, and Cystic Fibrosis Canada (CFC) is marking a milestone not just in years—but in life-changing progress. Their latest impact report is a tribute to every donor, volunteer, doctor, and advocate who's turned hope into momentum.

Big Numbers, Bigger Impact

Since its founding, CFC has invested nearly $289 million into research and care, a number that tells a story of thousands of lives made longer, stronger, and more vibrant. In just the last year, over $7 million supported cutting-edge research, while $2 million helped sustain clinics and transplant programs across the country. That’s real investment in real people.

Breaking Down Barriers

One of the quiet revolutions CFC helped lead? Ensuring newborn screening for CF is now standard across Canada. That early diagnosis gives kids a fighting chance—and parents a head start in getting the care their child needs right from the beginning.

Access to the best treatments shouldn’t depend on your postal code or your mutation type—and CFC is making sure it doesn’t. Thanks to relentless advocacy, medications like Trikafta are now available to more people than ever, including those with rare forms of CF.

Even more inspiring? Over 60% of Canadians with CF are now enrolled in clinical trials through CFC’s CanACT network—bringing breakthrough treatments within reach for more families, faster.

This Isn’t Just Data—It’s Real Life

Behind each milestone is a face, a name, a story.

It’s the parents who now get to watch their child graduate high school—something that once felt impossible. It’s the young adult planning a future, thanks to a medication that’s giving them energy to live, not just survive. It’s every family who breathes easier knowing they’re not in this alone.

The truth is, cystic fibrosis is no match for the power of community, science, and compassion united. What began as a battle for survival has become a story of resilience, progress, and joy.

Here’s to 65 years of grit and grace—and to the future? It’s never looked brighter!

 


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